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Friday, July 17, 2020 | History

1 edition of Quality of life and quality of care in epilepsy found in the catalog.

Quality of life and quality of care in epilepsy

Quality of life and quality of care in epilepsy

update 1993 : proceedings of an extended panel discussion held in Oslo, Norway on 5 July 1993

  • 384 Want to read
  • 14 Currently reading

Published by Royal Society of Medicine Services in London .
Written in English

    Subjects:
  • Epilepsy -- Treatment -- Great Britain -- Congresses.,
  • Epilepsy -- therapy -- congresses.,
  • Quality of Health Care -- congresses.,
  • Quality of Life -- congresses.,
  • Quality of life -- Great Britain -- Congresses.

  • Edition Notes

    Includes bibliographical references.

    Statementedited by David W. Chadwick, Gus A. Baker, and Ann Jacoby.
    SeriesRound table series / Royal Society of Medicine Services -- no. 31, Round table series (Royal Society of Medicine Services (Great Britain)) -- no. 31.
    ContributionsBaker, Gus A., Chadwick, David., Jacoby, Ann.
    Classifications
    LC ClassificationsRC372 .Q82 1993
    The Physical Object
    Paginationv, 102 p.
    Number of Pages102
    ID Numbers
    Open LibraryOL17332666M

    Quality of life in epilepsy: beyond seizure counts in assessment and treatment. Edited by gus a baker and ann jacoby. (Pp , £). Published by Harwood Academic Publishers, Amsterdam, ISBN 90 6. The issue of quality of life in epilepsy has developed enormously over the past 10 years. Although this is still rather belated in relation to other conditions where the issue has. Epilepsy was a clinical priority for RCGP for – These resources are designed to support GPs and fellow primary healthcare professionals to improve the quality of life and care of people with epilepsy. Seize Control Campaign. National charity, Epilepsy Action, launched its Seize Control campaign. It aims to empower people who are.

    Of the remaining patients, three refused to complete a quality of life assessment and a proxy was unavailable to provide this information. These patients are excluded. Of the remaining 97 patients, 25 had documentation of a quality of life assessment during the measurement period. This is the numerator. Quality of patient care = 25/(). Dr. Health‐related quality of life (HRQoL) is a multidimensional concept that includes physical health, psychological state, and social relationships (Schipper et al., ).As a chronic disorder, epilepsy has considerable negative impact on people’s day‐to‐day functioning (Baker, ).Apart from experiencing seizures and their detrimental impact on cognitive function, particularly memory.

    Purpose: Studies in adults with epilepsy, mainly in specialized epilepsy clinics, have shown that sleep disturbances were twice as prevalent in people with epilepsy as in healthy controls. Our aim was to determine the prevalence of sleep disturbances in people with epilepsy treated in district hospitals, as well as the impact of it on Quality of Life. Epilepsy Quality Measures Approved August Epilepsy Quality Measures () Updating the Quality MeasuresIn August , along with representatives from AES, the American Academy of Neurology (AAN) updated the original Epilepsy Quality Measures. These measures are set for another update in Representatives from AES will again participate in this process and work.


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Quality of life and quality of care in epilepsy Download PDF EPUB FB2

When treating a patient with epilepsy it is important to evaluate the degree to which their epilepsy affects their life. One way to define and monitor the impact of epilepsy and seizures on your patient's life is to ask patients to record their feelings on questionnaires.

As such, assessments of quality of life (QOL) and seizure severity can be used to document your patient's. The quality of life in epilepsy (QOLIE) was used for collecting data on health-related QOL with the permission of the Research and Development (RAND) Corporation.

It consists of seven subscales, which are seizure worry, emotional well-being, energy/fatigue, cognitive functioning, medication effects, social functioning, overall QOL, and one Cited by: 6. ] Epilepsy ; Butterworth-Heinemann Quality of Life in Epilepsy Bruce P.

Hermann The purpose of this article is to review the concept of quality of life in epilepsy. Quality-of-life issues have garnered considerable interest in the broader health- care literature, and varying models and methods of assessment have been pro- by: The owner’s quality of life correlates with the perceived quality of life of the pet and some owners reported panic attacks, depression and feeling isolated for looking after an epileptic pet (Wessmann et al., ).

Changes in behaviour and cognition. Most recently, behavioural changes and cognitive impairment have been studied. Background: Epilepsy is a common chronic neurological disorder that has a great impact on people’s lives.

Patients with epilepsy are at increased risk for poor Quality of Life (QoL). The objective of this study was to evaluate the QoL of epileptic patients in comparison to healthy persons. The increasing emphasis on the importance of non-clinical outcomes in the assessment of new treatments and management strategies for chronic conditions such as epilepsy has stimulated interest in methodological issues in assessing quality of life.

This book reviews the recent literature on the impact of epilepsy on everyday experience and the. Historically, epilepsy has been a stigmatizing medical disorder par excellence, and Dell argued that, even in contemporary worlds and times, its stigma remains real and serious, limiting the quality of life of those affected by it.

Support for Dell’s observation has been found in research linking the stigma of epilepsy to increased rates of. The QOLIE is a survey of health-related quality of life for adults (18 years or older) with epilepsy. [Adolescents (ages years) should complete the QOLIE-AD, which is designed for that age group.] This questionnaire should be completed only by the person who has epilepsy (not a relative or friend) because no one else knows how YOU feel.

Quality of life outcome for patients with epilepsy Measure Purpose: Improve quality of life outcomes for patients with epilepsy The numerator: Patients whose most recent QOLIEP score is maintained or improved from the prior QOLIEP score^ obtained in the measurement period. “End-of-life doulas provide non-medical, holistic support and comfort to the dying person and their family, which may include education and guidance as well as emotional, spiritual or practical care, from as early as initial diagnosis through bereavement.” - The National End-of-Life Doula Alliance, Buy Quality of Life in Epilepsy: Beyond Seizure Counts in Assessment and Treatment 1 by Baker, Gus A, Baker, Gus A., Jacoby, Ann (ISBN: ) from Amazon's Book Store.

Everyday low prices and free delivery on eligible s: 1. Book Description. Though clinical aspects of epilepsy such as seizure control are crucially important to its management, increasing attention is being given to wider quality of life issues.

The QOLIE contains 17 multi-item measures of overall quality of life, emotional well-being, role limitations due to emotional problems, social support, social isolation, energy/fatigue, worry about seizure, medication effects, health discouragement, work/driving/social function, attention/concentration, language, memory, physical function, pain, role limitations due to physical problems.

and have an overall reduced quality of isolation and quality of life have also been shown to be significantly compromised in caregivers of people with epilepsy11 and demonstrate the extent to which epilepsy can impact the quality of life of both those living with but also caring for the condition.

The quality of care for adults with epilepsy: an initial glimpse using the QUIET measure. BMC Health Serv Res. ; •QUIET allows for the investigation into the kind of care people with epilepsy (PWE) receive. •What kinds of quality of care are patients receiving.

•How does the care. Epilepsy treatment has traditionally focused on medical therapy, sometimes to the exclusion of psychosocial and quality of life issues.

Yet epilepsy can affect many factors that influence patients’ quality of life. Coping with chronic illness, medication issues and side effects, as well as cognitive and behavioral issues related to epilepsy.

To examine the prevalence of self-reported epilepsy and active epilepsy, associated burden of impaired health-related quality of life, risk factors, and access to care in adults with self-reported.

The impact of epilepsy extends well beyond the direct effects of seizures and includes a number of challenges, which may lead to disability and severely reduced quality of life.

People with epilepsy can face diminished social support and family function, cognitive challenges, medical and psychiatric comorbidities, and stigmatization. Part of our study, the Dutch Quality of Life and Quality of Care Investigation in Epilepsy (DUQQIE), intended to cover several of the components of the quality of life (QoL) concept.

Abstract. Epilepsy is a chronic condition with numerous social and psychological consequences. This work aimed to review available data on epilepsy and the impact of surgical and pharmaceutical treatments on the quality of life in adults and children. Impact of Epilepsy on Quality of Life Epilepsy can be a significant burden for patients and caregivers.

For many patients, the initial challenge to optimizing care includes hav-ing a correct diagnosis. Access to neurologists with the skills and diagnostic equipment to differentiate between epileptic seizures and.

"Quality of Life in Epilepsy" has been an extremely useful resource for me in my investigation of life with this seizure disorder. The subtitle of the book, "Beyond seizure counts in assessment and treatment", is descriptive of a particular concern of mine.

Certainly the primary focus of epilepsy research is rightly aimed at the existing Reviews: 2. "As an epilepsy specialist, this book impressed; as a patient, it will impress greatly. It is accessible yet comprehensive. Practitioners and persons with epilepsy will appreciate having a book that explains, in more detail than a typical office visit, so much about epilepsy- from the basic physiology, syndromes, diagnosis, treatment and life s: